Friday, March 11, 2016

"I'm like...angry at numbers."

These words, spoken by Butt-Head, the bard of my generation, used to make me laugh.  They conjured my struggles with long division, algebra, and my difficulty having any concept of time.  Numbers were never my friend and I could never make them go away.  They used to annoy me, but now they truly anger me.   

Numbers effin' haunt me.  I did my first triathlon at the age of 34, after having spent my youth being decidedly unathletic.  Before I started training, I had never run more than one mile, and that was ONE time in 10th grade gym class.  So when I crossed the finish line, I felt amazing!  I did it!  I could do anything!  And then I made the mistake of looking at the race results.  I had finished dead last in my age group.  Effin' numbers.  I then tried to comfort myself with another number:  I had actually come in ahead of another woman who was 10 years my junior, but decided she must have run the entire race while carrying a full bag of groceries.

I used to joke that I became an English teacher in order to avoid numbers, but there's no avoiding numbers.  I love my job, but I HATE grading essays.  I hate putting a number value on their work.  I would much rather write comments all over it and hand it back.  "Here you go!  This is what you did well, and this is where you need to improve."  No numbers, just feedback, because numbers are heartbreaking.  I remember sitting with a weepy girl who was so frustrated that she wasn't getting A's.  (Gone are the days of rewarding effort; we're required to grade off a standards-based rubric.  Thanks, Common Core!)  She was working so hard, but she wasn't meeting the benchmarks for an A.  I remember taking out her portfolio and spreading her papers all over the table.  Her early writing was really weak and unfocused and now she was doing solid B work.  I tried to get her to see past the grade and look at the big picture. 
    
"Look," I said to her.  "Look how far you've come.  You've gotten so much better at this!  Can you see that?  Can you see how hard you've worked and how much you've improved?  You should be so proud!"  I was rewarded with a sniffling, teary attempt at a smile, but I don't know if I really got through.

Which brings me to my current anger at numbers.  In advance of my son's re-eval meeting, I was sent his test scores.  They wanted benchmarks, and I understand that.  Still, it's hard.  See, I try really hard to focus on the big picture.  I remind myself how happy I was when, at two, my son learned to sign "more" and "more milk," because he was effectively communicating his needs in a way that was much nicer than screaming and throwing his dinner against the wall.  Now he can make such requests as, "Go to the restaurant for pizza and pasta and cheeseburgers and french fries and chocolate milk and ice cream, PLEEEEEEEZE!"  Now that's progress!

So to see, in black-and-white, that my son scored below the first percentile in linguistic concepts and sentence comprehension was a gut punch.  To see, in black-and-white, that he still exhibits "severe receptive, expressive, and pragmatic language deficits"--even after all the hard work from everyone involved--is very, very hard.  And I'll admit it.  I cried.

Black-and-white sucks.  Numbers suck.  I have to talk myself down.  I have to focus on the big picture.  I have to remind myself of my own words:  "Look how far he's come!  He's worked so hard!  You should be proud!"

And I am proud, because we're all working hard, and he is getting better.

Also because he can say, "Fuck it!" like a champ.

6 comments:

  1. I came to your blog via a comment you left on another autism blog. I can understand your frustration and heartache. Our almost eight year old was diagnosed with Sensory Processing Disorder and speech issues when he was just over four years old. It was hard seeing his issues in black and white, and I cried a lot. He has been in ST and OT ever since, and just had a plethora of tests (eight in all, NOT counting OT) done through the school for his re-evaluation. The first tests graded, so to speak, were his speech evaluations. He has made a lot of progress in speech, but we knew he had a long ways to go. We didn't realize how long until we read the reports. He has the articulation level of a three year old (granted, he had three teeth removed two years ago when he broke them at the root line, and they haven't come in yet). His oral expression score from the OWLS-II test put him at the percentile rank of 1, and his overall language composite standard score put him in the 10th percentile. Well, damn. In the end, he had two more speech/language disorders added to his repertoire of speech issues and was finally officially diagnosed with autism. Somehow, though, seeing the autism test scores didn't bother me so much as the speech ones. I guess I still have guilt that I didn't fight back when a doctor told us our son was lazy in his speech (at two years old) and I didn't agree. It was two years before his speech issues were recognized by his regular doctor, two extra years he could have been in therapy but wasn't. Oh well, at least he's getting the help he needs now!

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    1. Oh my gosh, how frustrating. Those tests hurt, man. I'm glad he's getting help now! Hugs.

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  2. Some days, it's really hard to see past the numbers that everyone else is judging him by. I feel this one deeply❤

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  3. Some days, it's really hard to see past the numbers that everyone else is judging him by. I feel this one deeply❤

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  4. I hate those tests. Why not give me a nice papercut and pour salt and lemon juice in the wound?

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  5. I am Sophie from Canada, I once suffered from a terrible and Chronic autism ,since i was bone , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 31 years, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Kate on how his son was been cured from autism through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months and two weeks as prescribed by dr williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again . for more information you can visit his blog autismepilepsy.blogspot.com for help

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